Forum Uppsala-Örebro is the regional node for the county councils Dalarna, Sörmland and Värmland, and the regions Uppsala, Örebro, Västmanland and Gävleborg in the national collaboration Clinical Studies Sweden. Patric Amcoff, node manager for Forum Uppsala-Örebro, tells more about the ongoing work on regional and national coordination.
Forum Uppsala-Örebro continues to develop healthcare regional coordination and the establishment of an efficient infrastructure with our seven local nodes (Local Node Network, LNN). The activities of Forum Uppsala-Örebro and LNN have been reviewed by an external auditor with the purpose of identifying bottlenecks and areas for improvement. In the follow-up of this review, Forum Uppsala-Örebro's commissioner, the Regional Research Council, has decided to establish a joint action plan for Forum Uppsala-Örebro and the research funding part of the Regional Research Council to more efficiently link the two activities. The joint action plan is coupled to the new regional R&D strategy for 2019-2024, resulting in longer-term planning and follow-up of the operations of Forum Uppsala-Örebro.
Forum Uppsala-Örebro and representatives from the seven local nodes have been very active in national development and coordination efforts and we participate in all national working groups and projects. Participation is very positive for our operations as it builds skills both at local as well as regional level, and infrastructure for national joint activities. Forum Uppsala-Örebro, together with Uppsala Research Center (UCR), leads the development initiative National Standard R-RCT (Register-based Randomised Clinical Trials), which aims to develop a national guideline for R-RCT.
Forum Uppsala-Örebro and LNN have developed a process for collecting data from ongoing clinical studies via the clinics. A first report that deals with ongoing cancer studies has been published. This work continues with the goal of being able to report updated information on all diagnostic areas and simplify and improve the process of data collection.
Office for Clinical Studies
Östra Hamngatan 26
SE-411 09 Göteborg
Phone: +46 (0)31 757 41 75
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