Research subject survey
The aim is to develop a national research subject survey. The results of compiled surveys can provide statistical data for improvement work at research clinics and enable adaptations of studies according to the participants' needs.
Patients’ experiences and views on health and medical care is an important part of the development and improvement work of healthcare. The National Patient Survey, which is coordinated by the Swedish Association of Local Authorities and Regions (SALAR), and is currently used for regular national surveys of patient experiences within health and medical care, does not include any opportunity for nation-wide collection of views and experiences of persons who have participated in clinical studies.
The goal is to achieve national agreement and efficient dissemination of the survey, via SALAR and the national R&D manager network. The survey will be used to collect views and experiences of persons who have taken part in clinical studies in open and primary healthcare. Other sectors of health and medical care shall also have the opportunity to partake of the survey and use it to follow up the experiences of participants in a research context.
Quality assurance and verification of the survey is included within the framework for the project, through a pilot survey carried out in collaboration between Gothia Forum (PTC Göteborg), Forum Uppsala-Örebro (AKP Örebro) and SALAR.
The project started in Q4 2016 and is expected to be completed by Q2 2018.