Research subject survey

The aim was to develop a national research subject survey. The results of compiled surveys was going to provide statistical data for improvement work at research clinics and to enable adaptations of studies according to the participants' needs.


Patients’ experiences and views on health and medical care is an important part of the development and improvement work of healthcare. The National Patient Survey, which is coordinated by the Swedish Association of Local Authorities and Regions (SALAR), and is currently used for regular national surveys of patient experiences within health and medical care, does not include any opportunity for nation-wide collection of views and experiences of persons who have participated in clinical studies.


The goal was to achieve national agreement and efficient dissemination of the survey, via SALAR and the national R&D manager network. The survey was going to be used to collect views and experiences of persons who have taken part in clinical studies in open and primary healthcare. Other sectors of health and medical care had also the opportunity to partake of the survey and use it to follow up the experiences of participants in a research context.

Quality assurance and verification of the survey was included within the framework for the project, through a pilot survey carried out in collaboration between Gothia Forum (PTC Göteborg), Forum Middle Sweden (AKP Örebro) and SALAR.

Time plan

The project started in Q4 2016 and was expected to be completed by Q2 2018.